Brave mum always knew daughter, 9, would die – but could do nothing to help pain

I was 29 when my daughter Breanne was born.

She was beautiful and perfect, and I was completely in love.

At first, everything was wonderful.

She was a happy baby.

But at just a few weeks old, she suddenly stopped breathing properly and I rushed her to hospital.

She suffered a seizure and was taken straight to intensive care.

I watched in torment as doctors struggled to figure out what was wrong with her.

The seizures continued and eventually Breanne was diagnosed with Dravet syndrome, a very rare and life-limiting form of infant epilepsy.

Jeannette’s daughter Breanne suffered from a severe type of epilepsy called Dravet syndrome.


Despite having spent years working as a critical-care and paediatric nurse, I’d never heard

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