Nancye Rewi and her youngest daughter Caydence, 2. Caydence has been diagnosed with an extremely rare genetic disorder called CDKL5, which causes extreme seizures.
Nancye Rewi wakes up not knowing what the day will bring.
Rewi is a stay-at-home mum – her youngest daughter Caydence, 2, has been diagnosed with an extremely rare genetic disorder called CDKL5.
The disorder means Caydence suffers prolonged and difficult to control seizures, and severe neuro-developmental impairment.
Nancye must carry Caydence everywhere, as she cannot talk or walk. Doctors have told Nancye she never will.
There are only about eight children