It’s bed time for 13-year-old Viridiana. And as her parents, Roberto and Maria, read to her, they know their daughter’s own story is different than a normal child’s.
“She depends on us for almost, just about everything,” says Roberto Ortego, Viridiana’s dad.
And it’s a story Viridiana can’t share because seizures robbed her of the ability to talk.
She suffers from Dravet syndrome. It’s a severe form of epilepsy that
causes up to 15 seizures a day.
Scarier still is that Dravet syndrome can be deadly.
The Ortegas have tried every medication to stop the seizures, with no luck.